Tag Archives: Patients

Google using millions of patients’ data from Ascension for R&D

Dive Brief: Google has been using the personal health information of millions of Americans provided by Ascension, the second largest health system in the country, to develop new healthcare product lines without patient consent. Though the practice is legal under HIPAA, the news, first reported by the Wall Street Journal, sparked outrage over privacy concerns. A… Read More »

Cleveland Clinic looks to tech to help double number of patients

Last year, the Cleveland Clinic cared for more than 2 million patients—an unprecedented number. However, president and CEO Tom Mihaljevic, MD, says it’s a small fraction compared with what the health system can and should be doing. “The care that we deliver today is of paramount importance to those in need,” Mihaljevic told an audience… Read More »

FDA Approves Label Update for Crysvita (burosumab) for the Treatment of X-Linked Hypophosphatemia (XLH) in Pediatric Patients 6 Months of Age and Older

Print this page NOVATO, Calif., and TOKYO, Sept. 30, 2019 (GLOBE NEWSWIRE) — Ultragenyx Pharmaceutical Inc. (NASDAQ: RARE), a biopharmaceutical company focused on the development of novel products for serious rare and ultra-rare diseases, and Kyowa Kirin Co., Ltd. today announced that the U.S. Food and Drug Administration (FDA) has approved a label expansion for Crysvita (burosumab). The label has been updated to include… Read More »